Hi! I am a North Carolinian in the early stages of Huntington’s Disease. I have three marvelous at-risk sons, two awesome stepsons, and the most handsome, intelligent, honest and innately good husband that anyone could ask for. That’s him with me, up there. Our family is rounded out by a German Shepherd Dog and a Miniature Poodle. I also have a best friend, Nina, who helps me deal with the real world. She is determined that I get the most out of every day that I have, so she and my husband suggested that I start this blog.
I’ve compiled my experiences into book about my journey with HD. You can read about it on the sidebar.
With this blog, I hope to make many connections with people all over the world based on our shared experience with the monster.
Huntington's Disease and Me 
Good for you and God bless Nina. You are both special ladies … almost said girls because i think of us as still in high school! Look forward to reading your thoughts..
LikeLiked by 1 person
I’m so proud of you Sarah and I look forward to reading your blog to help me better understand what you are going through. I’ll be here when you come for your study again and will always look forward to seeing you and Nina. Thinking of you, praying for you, and sending positive thoughts your way. Your courage and strength inspire me! Love you!
LikeLiked by 1 person
You are really really doing the good work Sarah. U r so remarkable ! Thank u for sharing. That’s all we have when it comes down to it.
LikeLiked by 1 person
It’s good to share. You have my respect and my best wishes.
LikeLike
As the wife of a wonderful woman who has a baseball cap that says “44” and does not mean henry Aaron, let me thank you for this blog.
LikeLike
Sarah, you have such beautiful words and ways of describing your thoughts and emotions. I had no idea you had started this blog, but will be reading it often now. Love to you and your family…you are all in my thoughts and prayers.
LikeLike
Sarah, thank you for your honesty. While we each have burdens to bear, so seldom do we bare our souls and infirmities to others for fear of being judged or pitied. I applaud your determination to stand strong and be yourself regardless of what tomorrow may bring. It is authentic and has a meaningful impact on others.
LikeLike
Sarah, thanks for sharing. You are very courageous. I am gene positive and have also been in the Predict study.
LikeLike
hi ….i’m looking forward to learning more about you and your family ….keep going
LikeLike
Amazingly inspirational and brilliantly written blog Sarag, reading through volume 1 and look forward to your honest and clever words, djnetjne we have to accept What we once were will no longer define us to use Your ability to inspire others who face the struggle and positively let HD define you gives do much meaning to your plight – Happy New Year 2016 to you and your family xxx
LikeLike
Found your blog through the book “Life Interrupted” that I started reading after I was told I carried a CAG repeat of 43. Truly inspiring, thank you x
LikeLiked by 2 people
Sorry we share this boat. Hoping that you are coping with it as well as you can. xxxx
LikeLike