About Me and HD

Hi! I am a North Carolinian in the early stages of Huntington’s Disease. I have three marvelous at-risk sons, two awesome stepsons, and the most handsome, intelligent, honest and innately good husband that anyone could ask for. That’s him with me, up there. Our family is rounded out by a German Shepherd Dog and a Miniature Poodle. I also have a best friend, Nina, who helps me deal with the real world. She is determined that I get the most out of every day that I have, so she and my husband suggested that I start this blog.

I’ve compiled my experiences into book about my journey with HD. You can read about it on the sidebar.

With this blog, I hope to make many connections with people all over the world based on our shared experience with the monster.


13 thoughts on “About Me and HD

  1. Good for you and God bless Nina. You are both special ladies … almost said girls because i think of us as still in high school! Look forward to reading your thoughts..

    Liked by 1 person

  2. I’m so proud of you Sarah and I look forward to reading your blog to help me better understand what you are going through. I’ll be here when you come for your study again and will always look forward to seeing you and Nina. Thinking of you, praying for you, and sending positive thoughts your way. Your courage and strength inspire me! Love you!

    Liked by 1 person

  3. Sarah, you have such beautiful words and ways of describing your thoughts and emotions. I had no idea you had started this blog, but will be reading it often now. Love to you and your family…you are all in my thoughts and prayers.


  4. Sarah, thank you for your honesty. While we each have burdens to bear, so seldom do we bare our souls and infirmities to others for fear of being judged or pitied. I applaud your determination to stand strong and be yourself regardless of what tomorrow may bring. It is authentic and has a meaningful impact on others.


  5. Sarah, thanks for sharing. You are very courageous. I am gene positive and have also been in the Predict study.


  6. Amazingly inspirational and brilliantly written blog Sarag, reading through volume 1 and look forward to your honest and clever words, djnetjne we have to accept What we once were will no longer define us to use Your ability to inspire others who face the struggle and positively let HD define you gives do much meaning to your plight – Happy New Year 2016 to you and your family xxx


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