After a few dicey days
or maybe they were weeks
or maybe it was the whole summer
I see a bit of light.
If I follow it, I think it could help me escape from where I’ve been trapped, an emotional cage that has felt like the hot, dark trunk of a stranger’s car.
I’m taking the extra, discretionary pill. I’m doing the exercise. I am following suggestions.
And even though I forgot to wash out the conditioner, I took a shower.
As recently as last night, it could have gone either way. But I am feeling some clarity that I’ve missed for a long time and I’m holding on to it. I am thankful today to be alive and to be able to have another pass at enjoying life.
So many people I know have lost one or more family members to HD recently and there are also some families that are winding up for that final unraveling.
To the Valvano family and the other families who are preparing either to memorialize their loved ones, or to bear down and stay with them through the end, I have thought about you and prayed for you often. I’ve remembered you, even while in the trunk. My thoughts have often been about you and the love that you feel for your loved ones and about the love the HD community itself emanates.
And somehow, wanting to stretch my arms across the miles to hold you has helped bring me closer to fine.