It may be HD awareness month everywhere else in May, but in New Bern, NC, it’s June. Mayor Dana Outlaw, issued this proclamation!
June starts off with the HD Paddle on June 4, which you’ve heard about.
Let me tell you about the culminating activity of the month: a screening of “The Huntington’s Disease Project: Removing the Mask,” the award winning documentary by James Valvano of WeHaveAFace.org.
3pm Saturday, June 18th is the time of the free screening. Everyone is invited to the historic Masonic Theater on Hancock St. in New Bern.
The people who made the film will be on hand to meet people and answer questions about HD.!
The choice of the Masonic theater in New Bern to show the film was intentional, as it is laden with symbolism.
The Masons are a secret society that has been around for some time. And people with HD have been historically stigmatized by themselves or by society because of misdiagnoses and lack of awareness about the nature of the disease. People with HD have, over the centuries, unintentionally formed a secret society themselves.
But this film burst through the harshest, hardest to watch and hear secrets of what it is like to have HD, as told by people who have the disease or have loved ones with HD. You will leave the theater with your eyes wide open, wondering how you never known about or fully understood all of this was going on with HD around the world, at a higher rate than, say, ALS.
What I want, more than anything, is to have the Masonic theater filled with people. So please help me get the word out by sharing this blog with your friends in New Bern and nearby cities, the people you work with, the people at your church, and your medical professionals.
Please make sure everyone you are facebook friends with knows about the upcoming film, and ask them to spread the word.
You will gain an awareness about HD and the HD community, even the people who are still afraid to come out of the shadows, will know that you, like Mayor Outlaw, are their champion.
And when you’re isolated and alone, there’s no better feeling than knowing that other people want to understand your experience.