The ALS Organization has raised 10 million dollars so far this summer with the Ice Bucket Challenge. What’s more, it has raised even more public awareness of the disease. People who never heard of ALS are now becoming involved in finding a cure.
Public awareness has always been elusive for the HD community. HD has historically been misdiagnosed, undiagnosed, and guarded as an ugly family secret. Only in the last decade or so have thousands of people started “coming out” as having HD, shaking off the residue of undeserved shame that has kept the disease away from public awareness.
Today, I begin the HD Pie in the Face Challenge. The challenge says that you can get a pie in the face or donate $100 to a charity that researches or advances the cause of HD, such as HDSA.org or WeHaveAFace.org a grassroots organization for “The Huntington’s Disease Project” – an international documentary project). The challenge would involve smearing a paper plate with Cool Whip and having someone smash it into your face while it is being filmed. Then you would challenge a few of your friends to the Pie in the Face Challenge, and post the whole event on Facebook and other social media.
I have contacted the marketing department at Kraft, the maker of Cool Whip, with this idea through their “Contact Us” page, but if you like the idea, why don’t you contact them as well? Kraft could promote the challenge and we need all the help we can get in raising awareness. It seems like it would be win/win for Kraft. Here is the contact page for Kraft:
http://kraftfoods.custhelp.com/app/contact/sa/1/ Select the corporate department.
I have also contacted HDSA with my intention. If someone opts to forgo the pie in the face, then they can donate $100 to hdsa.org, WeHaveAFace.org in the US, or a research organization in another country.
Often, I find that I am a prisoner of inertia. But today I got up and went to the store. I started the Challenge today and posted my messy face on Facebook. I also challenged some people that I know really want to raise awareness. Tag me and your video will be added to the “Help 4 HD Huntington’s Disease Awareness” Mobile App!
Here I am:
I challenge you to do the same! It is only by doing that things can change.